|
RESEARCH STUDIES |
|
DYSTONIA STUDIES RECRUITING DYSTONIA PATIENTS– Sometimes we forget how fortunate we are to live in a part of the country where we have access to some of the best medical specialists for dystonia around, and also have the opportunity to take part in clinical research studies. The following research trials are looking for study participants. Clinical trials are always very valuable, both for the patients who receive quality medical care and products not yet available to the general public at no cost, but also because new and innovative therapies would never become FDA-approved without study participants. So, this is a win-win situation, where everyone benefits.
***************************************************************************** GENETIC STUDY. Volunteers are urgently needed! Finding the genes for dystonia may be the key to understanding what goes wrong and how we can better treat or cure it. A collaborative team from Beth Israel Medical Center and Mount Sinai School of Medicine is conducting a study aimed at finding these genes. If there are two or more living individuals in your family with any form of dystonia (torticollis/cervical dystonia, blepharospasm, spasmodic dysphonia, writer’s cramp, generalized) please contact Deborah Raymond for more information about this important study. Participants will be asked to complete a short questionnaire and medical record release form, sign study consents, and give a blood sample. You do NOT need to live in or near NY to participate! Your information will be kept strictly confidential. You can help to unlock the mysteries of dystonia! For more information please contact: Deborah Raymond, M.S. |